Advisory Group

An Advisory Group advises the project directors on the resource identification, evaluation, gap analysis, project selection and development and dissemination plan. Experts include nurses, genetic health educators, and genetic experts, as well as representatives from other healthcare disciplines. Members were selected based on their national reputation; established expertise in genetics, genomics, family history assessment, and experience in nursing education. The Group assisted in content expertise and peer review of materials for accuracy, relevance and utility.

Advisory Group:

Bernice Coleman, PhD, ACNP
Research Scientist, Nursing Research and Development
Nurse Practitioner
Cedars-Sinai Medical Center

Sandra Daack-Hirsch, PhD, RN
Assistant Professor
College of Nursing
University of Iowa

W. Gregory Feero, MD, PhD
Maine Dartmouth Family Medicine Residency
Associate Editor, JAMA

Constance Goldgar, MS, PA-C
Assistant Professor (Clinical)
Division of Physician Assistant Studies, School of Medicine
University of Utah

Deborah J. MacDonald, PhD, RN, APNG
DJM Cancer Risk Consulting

Cynthia A. Prows, MSN, CNS, FAAN
Clinical Nurse Specialist, Genetics
Children's Hospital Medical Center

Diane Seibert, PhD, CRNP, FAANP
Professor and Director of the Family Nurse Practitioner Program in the
Graduate School of Nursing
Uniformed Services University of the Health Sciences

Health Resources and Services Administration (HRSA) Representative:

Irene Sandvold, PhD, RN
Division of Nursing, Bureau of Health Professions, Health Resources and Services Administration

Case Specific Advisor (for Lena Case):
Lillian Tom-Orme, PhD, MPH, RN, FAAN
Associate Professor, Division of Clinical Epidemiology
University of Utah

Familial Hypercholesterolemia Advisory Group:

Cat Davis Ahmed, MBA
VP, Policy and Outreach
Familial Hypercholesterolemia Foundation

Emily Brown, MGC, CGC
Genetic Counselor
Center for Inherited Heart Disease
Johns Hopkins Hospital

Joshua W. Knowles, MD, PhD
Assistant Professor of Medicine
Stanford University Medical Center
Chief Medical Advisor, The FH Foundation


Margo B. Minissian, PhD, ACNP, CLS, AACC, FAHA
Nurse Scientist
Cardiology Nurse Practitioner
Clinical Lipid Specialist
Cedars-Sinai Heart Institute
Women's Heart Center

Kiran Musunuru, MD, PhD, MPH, FAHA
Associate Professor of Cardiovascular Medicine and Genetics
Perelman School of Medicine at the University of Pennsylvania NHGRI Inter-Society Coordinating Committee for Practitioner Education in Genomics (ISCC)

Director of Preventative Cardiology
CGH Medical Center
Professor of Clinical Family and Community Medicine
University of Illinois College of Medicine

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